A roller-coaster of emotions. No sleep and no rest.

Goodmorning my beautiful butterflies 🦋  I hope you all are doing good!

been awake for god knows how many hours (5am yesterday) and I can honestly say that iam beat! I am so tired but hey, life as a parent right?

So as you have read, yesterday my son had to do some surgery in his mouth. Which was scary as hell but it all went fine. They had to remove two teeths on top of it all. No complications. No problems.

They told me (and husband) to go for a walk so we wouldn’t stress out, and have all kinds of emotions so we did. I didn’t want to go at first but tried to tell myself “E is in good hands. You can trust them” etc. So my husband and I decided to go to McDonald’s to grab breakfast. We hadn’t eaten anything just because E wasn’t allowed. And why should we eat when he can’t? na na thats not how we roll in our family.

afterwards,  we went back to the hospital and sat down. Waited on the call that now they are done but nothing. So I went and got E’s medicines while waiting.

Unfortunately M (husband) had to go to work. He was only allowed to start one hour later than his normal schedule which was super kind of them. So I was left alone .. Didn’t know what to do but I knew I would get my mind into dark and bad thoughts if I sat there waiting so I went out. For a walk. Just trying to breathe.. After a while I went back.. guys if you only know how many times my mind played tricks on me while I was out. The mindtricks that the phone rang so I rushed to grab it etc but no calls. Until I sat down for a few minutes.. The phone actually rang! I dropped everything (literally.. I was drinking a bit soda when they rang) and almost cried when they said that they were done and that E is now at the observation room.

I almost raaaaaan and got myself injured on the way 😂 yes.. it’s true. But I came there, looking around after E and there he was.. My strong strong boy. The relief when the doctors told me the highlights of the surgery. I was so proud of E.

It took 2 hours at the observation for him to wake up. During that time I tried to keep myself occupied so i didnt stare at the monitors etc. I played games, edited photos, tried not to fall asleep..

30 minutes after he woke up, got the needles, Tuesday etc removed, we were on our way home. Only 15 minutes after waking up he walked like nothing happened. It was insane.

yeah a little bit of a roller-coaster journey yesterday. A lot of feelings I never knew I could feel but I am glad that this procedure is done and I can relax for real now..

Update; He is in no pain what so ever and seems to not remember a thing which is good. He have noticed that two teeths are gone because he cant stop check/feel the spots. He found glue after heart monitor stickers on his body . Nothing much.  Tried to scratch it off but I gave him wet wipes instead.

conclusion;  E is stronger than I am 😅 I am truly impressed and proud over E how good he handled and dealt with this whole situation 👏🏻

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Now im gonna get ready to go to the hospital in an other town. E is at school and M is still at work (24h shift). Shower, dry my hair, makeup, find a good outfit and put the shades on. Let’s go!

I will blog more later. Toodles my butterflies 🦋 🦋

Successful day!!! My autistic boy did so good I could cry!

Wow! Finally a moment to breathe! Hello everyone! How are you all? Today has been a crazy day. So much to do, run around etc. Woosh.. But now iam finally in bed and can write this post.

Today was a success day for E! And iam so happy and proud!

cover face of E and my husband

We went to the doctors today. We didn’t know why we got the appointment and neither did the doctor. Oh well, the doctor did a check up on E while we were there. She wanted to listen to his heart and took the stethoscope and E actually let her listen! Of course it was a limit of time for her according to E so he took the stethoscope to listen to his heart and mine. He did sign for heart and said it out loud. He was sooooo playful in there. Took a face mask and tried on… for the very first time ever in his life!! When I used one, he always ripped it off and we’re so scared so this is a huge step for E ! He also took that tongue stick thingy and didn’t know what to do with it so I showed him on myself and he did it on himself. He took it to far back in his throat though but laughed. No harm done!

Yes I’m sharing this because it is a big moment for me as a mother. A mother to a special need child who face a lot of obstacles in life. So every happy thing that happen in his life is a mountain growing of pure happiness and proudness for me 🥺

Anger issues, autism and smart tabs

Good morning from the household Santorinis! I hope you all are doing good! I’m just sitting here, watching my son sit on the floor switching between watching Daniel Tiger, busses on youtube and listen to his favorite Punjabi song. E is half punjab so for me it doesn’t matter 🥰 It’s so cute when he tries to sing along to the song. I sent video to his father last night of E trying to sing along so he called me and had that broken voice (when you are happy crying) and I said that E is showing more interest of his culture. So here we go when my husband comes home! Exciting!

My husband is a Sikh but we have together agreed to raise E neutral so he can when he is older decide if he wants to be a Sikh, Muslim, Christian or anything he wants. Sometimes we have culture crash between husband and I but we work it out.

Happy child = happy mother.

E has his tab for the first time in 4 months. Before he had the tab all the time(weekends) til he developed anger issues when giving it back for bedtime so me and my husband agreed to remove the tab from him for a while and today I decided to try see how it works. Wish me luck.

we did not punish him for his anger issues. We were consulting with cps (you get automatically involved with them when your child get a diagnosis) and the special hospital (for autism etc) and we all agreed on removing the tab for a while. We have been talking, explaining, used sign languages and pictures to explain why he got mad, what happened to him etc. Unfortunately the school doesn’t listen to what we all have been telling him so they have allowed him using theirs etc but at home it has been fine. So hopefully this will go fine as well.

How is your Sunday?

Look how much it has grown since may! Happy mother!

My son came home one day from school and had a plant with him! how fun! it turned out that he had planted seeds in a bucket and it has grown. May 31rst he brought it back home and a few days ago we saw it has started to grown tomatoes!

Oh how fun and iam full of joy! this is E’s first plant ever and it’s growing! I can’t wait to share updates with you how much it has grown!

three tiny tomatoes on this picture but I think we counted to 8 tomatoes in total so far! Hopefully more will grow 🥰

How exciting! I have tried to grow paprika etc but it didn’t work. they all died. Don’t know why thought but maybe I should try it again? 🤔

Do you have any ideas on what to grow inside during fall / winter to put out on the balcony during the spring / summer? it would be fun to have our little garden on the balcony 🥰🥰