What are some things that make you smile?that is actually one hard question. There is so many things but my absolute number one thing that makes me smile is my son.
Pic from our roadtrip we did. Oct 12th 2024
Watching my boy growing up. See how proud he is when he manage to say words that we would understand. How he manage to have cracked the code for talking and saying few words and tries to say full sentences.
What make me smile is watching my son grow up and become independent, which he already is now but not on everything but mostly everything.
My son has autism. To be correct, he has autism 3 (the hardest autism) and is non verbal (can’t talk like us) so you can all understand my smiles and my happiness whenever E has learned to say a new word.
He tries really hard and he has improved so so much. He say or try to say words but he also sign them. If we do not understand him, we guess til he shows us that it was correct. Or if he is impatient he will just grab our hand and show us.
so this is one thing that will forever make me smile.. My beloved son 💕
Goodmorning my beautiful butterflies 🦋 I hope you all are doing good!
been awake for god knows how many hours (5am yesterday) and I can honestly say that iam beat! I am so tired but hey, life as a parent right?
So as you have read, yesterday my son had to do some surgery in his mouth. Which was scary as hell but it all went fine. They had to remove two teeths on top of it all. No complications. No problems.
They told me (and husband) to go for a walk so we wouldn’t stress out, and have all kinds of emotions so we did. I didn’t want to go at first but tried to tell myself “E is in good hands. You can trust them” etc. So my husband and I decided to go to McDonald’s to grab breakfast. We hadn’t eaten anything just because E wasn’t allowed. And why should we eat when he can’t? na na thats not how we roll in our family.
afterwards, we went back to the hospital and sat down. Waited on the call that now they are done but nothing. So I went and got E’s medicines while waiting.
Unfortunately M (husband) had to go to work. He was only allowed to start one hour later than his normal schedule which was super kind of them. So I was left alone .. Didn’t know what to do but I knew I would get my mind into dark and bad thoughts if I sat there waiting so I went out. For a walk. Just trying to breathe.. After a while I went back.. guys if you only know how many times my mind played tricks on me while I was out. The mindtricks that the phone rang so I rushed to grab it etc but no calls. Until I sat down for a few minutes.. The phone actually rang! I dropped everything (literally.. I was drinking a bit soda when they rang) and almost cried when they said that they were done and that E is now at the observation room.
I almost raaaaaan and got myself injured on the way 😂 yes.. it’s true. But I came there, looking around after E and there he was.. My strong strong boy. The relief when the doctors told me the highlights of the surgery. I was so proud of E.
It took 2 hours at the observation for him to wake up. During that time I tried to keep myself occupied so i didnt stare at the monitors etc. I played games, edited photos, tried not to fall asleep..
30 minutes after he woke up, got the needles, Tuesday etc removed, we were on our way home. Only 15 minutes after waking up he walked like nothing happened. It was insane.
yeah a little bit of a roller-coaster journey yesterday. A lot of feelings I never knew I could feel but I am glad that this procedure is done and I can relax for real now..
Update; He is in no pain what so ever and seems to not remember a thing which is good. He have noticed that two teeths are gone because he cant stop check/feel the spots. He found glue after heart monitor stickers on his body . Nothing much. Tried to scratch it off but I gave him wet wipes instead.
conclusion; E is stronger than I am 😅 I am truly impressed and proud over E how good he handled and dealt with this whole situation 👏🏻
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Now im gonna get ready to go to the hospital in an other town. E is at school and M is still at work (24h shift). Shower, dry my hair, makeup, find a good outfit and put the shades on. Let’s go!
I will blog more later. Toodles my butterflies 🦋 🦋
Finally we are back home. Now I can relax for real. Just waiting on a phone call from the doctor to tell me how it went etc.
When E woke up he didn’t want to stay and wanted to go right away. Even though he was affected of the anesthesia. After he woke up he was back to normal after 15 minutes so I decided we didn’t need to call my sister-in-law. We didn’t need the ride.
Ice cream from the nurse and almost 50cl water when he woke up.
I am truly super proud of E because he did so good.
This was the scariest thing I have ever been through.
Yeah I just wanted to update you all and now I’m gonna relax for real. Edit some photographs I have taken so I can upload them here. 🥰
Good morning from the household Santorinis! I hope you all are doing good! I’m just sitting here, watching my son sit on the floor switching between watching Daniel Tiger, busses on youtube and listen to his favorite Punjabi song. E is half punjab so for me it doesn’t matter 🥰 It’s so cute when he tries to sing along to the song. I sent video to his father last night of E trying to sing along so he called me and had that broken voice (when you are happy crying) and I said that E is showing more interest of his culture. So here we go when my husband comes home! Exciting!
My husband is a Sikh but we have together agreed to raise E neutral so he can when he is older decide if he wants to be a Sikh, Muslim, Christian or anything he wants. Sometimes we have culture crash between husband and I but we work it out.
Happy child = happy mother.
E has his tab for the first time in 4 months. Before he had the tab all the time(weekends) til he developed anger issues when giving it back for bedtime so me and my husband agreed to remove the tab from him for a while and today I decided to try see how it works. Wish me luck.
we did not punish him for his anger issues. We were consulting with cps (you get automatically involved with them when your child get a diagnosis) and the special hospital (for autism etc) and we all agreed on removing the tab for a while. We have been talking, explaining, used sign languages and pictures to explain why he got mad, what happened to him etc. Unfortunately the school doesn’t listen to what we all have been telling him so they have allowed him using theirs etc but at home it has been fine. So hopefully this will go fine as well.
a tradition where I now live. Fun part this year my brother attended with his old American. I had sent him a message asking if he was there and he said yes so I told him that E was standing in his window looking. So cute! it was my brother, one of his daughters and the wife (she drove) and that stopped the cruising just to honk and wave a lot to E 🥰 cutest part; when they drove again, E said “bye bye!” and waved 🥺 that’d adorable.
I love the fact that anyone can join, even if you have a regular car. 🥰 I grew up with old American cars, the rockabilly culture etc so having my son watching this warmed my heart a lot. He likes cars so it was a perfect opportunity to show him a bit of my childhood.
When the cruising was over, E continued to sit next to the window til he was going to sleep 🥺 He wanted to watch so much more. Broke my heart when I had to explain for him that it was over.
but it still warmed my heart ~ he saw a piece of my childhood right outside his bedroom window 🥰
Where we used to live, it never happened things like this. And since we moved here we have seen it three times. Loves it every time. It’s a tradition here in my town. They always have it August 31rst (doesn’t matter if it’s in the middle of the week) just to “drive out” the summer. Now it’s officially autumn / fall here 😍🍂
My son came home one day from school and had a plant with him! how fun! it turned out that he had planted seeds in a bucket and it has grown. May 31rst he brought it back home and a few days ago we saw it has started to grown tomatoes!
Oh how fun and iam full of joy! this is E’s first plant ever and it’s growing! I can’t wait to share updates with you how much it has grown!
three tiny tomatoes on this picture but I think we counted to 8 tomatoes in total so far! Hopefully more will grow 🥰
How exciting! I have tried to grow paprika etc but it didn’t work. they all died. Don’t know why thought but maybe I should try it again? 🤔
Do you have any ideas on what to grow inside during fall / winter to put out on the balcony during the spring / summer? it would be fun to have our little garden on the balcony 🥰🥰
hi, goodmorning everyone! How are you all today? I hope you all are doing good. Unfortunately I have migraine but I’m used to it.
Just came home after leaving E at the recreational ( is that the word? I used Google translator for this word) / Fritids (swedish) and all I can think of is that tomorrow (Aug 20th) my little boy, No sorry, my BIG boy is starting 2nd grade! Where did the time go? Wow.
kickbike, and babblarna (Swedish) just because they are colorful and he can practice the colors (he is non verbal but is trying really hard to pronounce them like us)
I cant stop being amazed how much E has developed since we moved here and the school took us seriously with his autism etc. Iam so proud of E 🥰
yes I’m one of those autism mom’s who will gladly share the development of my child. Hopefully I can find some autism parents here 🥰 would love that!
